My name is Rhea Kara. In 2014 when I was 8 years old I heard about the Reverse Rett charity from my primary school. This is a charity run by mums and dads of children who suffer from Rett Syndrome. Rett is an illness which does not allow you to use your body anymore. You suddenly can’t use your hands or legs and are trapped in your own body. It mostly affects young girls. I cannot imagine how I would feel if this happened to me – I would not be able to paint or do arts and crafts anymore!
There is not a cure for Rett as yet but there is hope. They have reversed Rett syndrome in mice and are now trying to get this treatment to work on young girls who are affected by this, such as my friend Hannah.